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Post by nevaehsmom327 on Nov 1, 2011 12:00:49 GMT -6
I really wish I didn't have to post this...but here I am again, struggling with pain and discomfort and everything else that comes with having Endometriosis. It's been 5 months since I had my surgery, but I still just don't feel as though things are back to normal. We tried to conceive once (well more than once of course!), and it worked, but didn't stick. The miscarriage was horrifyingly painful...for so many days. Now we're trying to conceive again and the pain is coming back even worse than before at some points  (not while we're doing the deed, usually after about an hour I get sharp stabbing pains like I used to on my left side). I'm just terrified that I'll have to go back in and go through the surgery again, or have him say I can't have kids anymore. I don't know. I'm just terrified. DH has no idea that the pain has come back this bad. I don't want to worry him with it, but I'm just looking for some support, and prayers. While I love my hubby very much, he just isn't as understanding as he should be to the situation right now. I'm reaching out and asking for prayers. Please pray that this gets figured out and that God can grant us our dream and desire of having a baby. Thanks for letting me rant, cry a little, and what not. You ladies rock. <3 |
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Post by laurac on Nov 1, 2011 12:09:48 GMT -6
I'm so sorry, Amy My niece has such bad endo as well and she'd had the surgery in July and conceived in November and just had a beautiful little girl in August. It will work. Maybe it's in your plan to figure out the job situation first and have all of your ducks in a row? I don't know. I pray for peace and comfort for you and your uterus. |
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Post by Sus on Nov 1, 2011 12:40:15 GMT -6
Only here, could one ask for peace and comfort for your uterus!!! Ames... I'm sorry honey, but Elsie made me giggle!!!!
Now.. on the serious side.
I'm SO sorry it is painful. Sounds like you need to leave behind all the PR toys and just go SLOW ... It won't be the best sex, but it won't hurt as much. And make sure you have some KY. None of the fancy stuff... just simple good old fashioned KY. And I think you're gonna have to at least tell him that you are hurting and you need to slow down a bit.
I feel like a real loser, as I din't know you had an Endo. I didn't think conception was possible after an endo... Tell me more, hon...
Until then, prayers for you, honey!!! <3 you
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Post by kristin8888 on Nov 1, 2011 13:59:39 GMT -6
Oh Amy, I can't imagine how terrible that must be. I will pray for you that everything will be ok and you will get your dream baby!
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Post by bunsy on Nov 1, 2011 14:02:39 GMT -6
Endometriosis is a nasty, nasty condition. Hold hope! My niece was told after her surgery that her tubes were irreversibly blocked and it was just a matter of time before everything would need to come out. 3 weeks later she was pregnant.
You just don't know. Keep trying but be honest with DH. He needs to know even if he doesn't quite get it. Men in general don't quite get it.
Well wishes to your reproductive organs!
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Post by lalinda on Nov 1, 2011 14:20:04 GMT -6
Hi Amy
I know how terrible this endo can be I suffered with it for years before I had my 1st surg many years ago. I did have to have to have it a few times but I wasn't trying to get pregnant, just couldn't stand the pain and other issues. But I have 2 healthy boys - I will pray for you.
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Post by supermommy on Nov 1, 2011 14:31:38 GMT -6
So sorry you are in so much pain. Praying for healing and pregnancy for you!
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Post by Sus on Nov 1, 2011 18:10:13 GMT -6
Vic makes a great point, too... You have plenty of time! love you!
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Post by ladyandrearose on Nov 1, 2011 18:13:29 GMT -6
Amy, I'm sorry that you are suffering, so! I will be praying for you.
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Post by jess7882 on Nov 1, 2011 20:42:36 GMT -6
I'll say prayers for you Amy! Talk to your hubby...and I agree with Sus put the toys n such away. It could be causing it to be more painful.
And...put a call into your doc and talk to him.
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Post by nevaehsmom327 on Nov 2, 2011 9:01:42 GMT -6
oh my you ladies are wonderful. I'm at my desk in tears because of all the love for my uterus (hehe) here. I realize I have plenty of time, but at some point, there's gotta be a cut off for me if I ever want to have some alone time in my life. DD will be graduated from high school when I'm 34. DSD will be when I'm 42. I don't want to have kids living at my house til I'm 60, I started young, would like to end young lol but I also know that it may not be in Gods plan for us right now. I did talk with the hubby about it last night...he said he could tell. Normal people don't typically cringe up and ball up on the floor for no reason. lol that and I've been really cranky lately just due to lack of sleep from it, and just being in pain. It's not fun for anyone to be in pain! But anyway, he knows it's going on...but there's just not much he can do about it either. Sus - you didn't KNOOOOW?!?!?!? j/k - but yes, I found out I had it about 10 or 11 months ago. I'm not really sure. Had surgery the day after we closed on our house. Doc said it could come back quickly, slowly, he's not really sure, every woman is different. There is no way to detect it without doing the surgery. It does not show up on ultrasound. Which SUCKS!!! lol but for the most part, the symptoms are pretty noticeable. And just so the record is straight, toys haven't been used in a LONG time in my household contrary to what all you ladies think...at least nothing that gets inserted  I was in the doc at the beginning of September. Right after I had the miscarriage. One of the things he said is that if it does come back, it will be a matter of just waiting until I can't handle the pain and doing surgery again, and then after that figuring out a way to either suppress it (bc pills) or to just remove everything. So at this point, it's literally just a waiting game with either getting pregnant, or getting surgery. |
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Post by Sus on Nov 2, 2011 11:33:56 GMT -6
aww dang it all, Amy.... Ya, I remember the house closing... I'm thinking I was distracted with my Dad's accident at that point of my life, perhaps??
I'm so sorry, hon! What a lousy friend I am!!
So what did you have done? Cuz I had an endometrial ablation around 7 years ago.. and was told 'no more kids' which was fine, as we were done. I was bleeding heavy and in major pain and anemic... so that was the route they suggested instead of a hysterectomy. As it is less evasive...
and for the record... I LOVE SPELL CHECK ON MOMs!!!!! lol!
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Post by nevaehsmom327 on Nov 2, 2011 12:59:52 GMT -6
Perhaps...which is totally understandable and I don't blame ya doll!!! Your dad is much more important! I had a laproscopic surgery done. They cut a hole in your belly button, and then one down by your pelvis, put a laser in one and a microscope in the other and burn everything off. I bled for about 14 days after...heavily. It was gross. And the pain too. The worst part was after when you get all the pain in your shoulders from the air in your system. What the heck is an endometrial ablation? Ugh...what us women go through...God sure did make us strong!! And i DITTO your spell check |
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Post by tara on Nov 2, 2011 13:01:03 GMT -6
Sending prayers your way Amy! And I hope you have some answers soon!
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(not while we're doing the deed, usually after about an hour I get sharp stabbing pains like I used to on my left side). I'm just terrified that I'll have to go back in and go through the surgery again, or have him say I can't have kids anymore. I don't know. I'm just terrified. DH has no idea that the pain has come back this bad. I don't want to worry him with it, but I'm just looking for some support, and prayers. While I love my hubby very much, he just isn't as understanding as he should be to the situation right now. 
